GOALS

• Securing funding and resources to advance his research on gene therapy for Friedreich's ataxia
• Publishing his findings in reputable scientific journals to contribute to the global understanding of FA and potential treatments
• Collaborating with pharmaceutical companies like Larimar Therapeutics to translate research discoveries into effective therapies for patients.

Frustrations

• Facing challenges in obtaining sufficient funding for rare disease research, which often receives less attention than more common conditions
• Dealing with the slow and rigorous process of scientific publication and peer review, which can delay the dissemination of important findings
• Feeling the weight of responsibility for finding a cure for FA, knowing that patients and families are depending on his research.

GOALS

• Raising awareness about Friedreich's ataxia and the challenges faced by the FA community using engaging and relatable content on social media
• Organizing fundraising events and campaigns to support FA research and patient support services
• Lobbying for policies that promote rare disease research, access to affordable treatments, and improved quality of life for patients.

Frustrations

• Encountering misinformation and stigma surrounding rare diseases, making it difficult to educate the public effectively
• Struggling to reach a wider audience beyond the FA community to garner broader support and understanding
• Witnessing the slow pace of progress in developing effective treatments for FA, fueling a sense of urgency and determination to make a difference.